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Executive Committee

Sharon F. Terry, Chair,
Genetic Alliance

Cynthia Pellegrini,
American Academy of Pediatrics

Derek Scholes,
American Heart Association

Joann Boughman,
American Society of Human Genetics

Timothy Leshan,
Brown University

Marla Gilson,

Barbara Harrison,
National Society of Genetic Counselors

Jeremy Gruber,
Council for Responsible Genetics

What does GINA Mean? A Guide to the Genetic Information Nondiscrimination Act

This tool provides a functional outline of GINA's protections to help clarify how the legislation impacts individuals and families. The resource includes:

    * a history of the legislation,
    * hypothetical situations of genetic discrimination, and
    * key examples and definitions.

The Coalition for Genetic Fairness encourages individuals to utilize the guide to answer general questions. Organizations are welcome to put the guide on their website, link to it, or adapt and customize it for your community.

This guide is intended to promote dialogue and discussion about GINA and does not include detailed analysis of the legislation. Additional information about GINA's implementation and impact will be clarified as the regulations for GINA's enforcement are drafted. This process has begun. For example, a Request for Information (RFI) has been issued to solicit comments from the public. More information can be found here.

NEW! View a print version of this resource!

GINA: An Overview

The History of GINA

How Does GINA Impact ME?
    arrow icon Health Insurance
    * Protections in GINA
    * What about submitting claims to my health insurance company?
    * What does GINA NOT do?
    arrow icon Employment
    * Protections in GINA
    * Under what circumstances can an employer, employment agency, labor organization, or training program have access to my genetic information?
    * What efforts must be made to ensure my information is kept confidential?
    * What does GINA NOT do?
    arrow icon Examples of Genetic Discrimination
For Health Insurers

For Employers

For Clinicians and Healthcare Providers

For Researchers

For States

What's Next?

Helpful Definitions Additional Resources

Do you have a question about GINA that was not answered by this resource? Send your question to Andria Cornell, Public Policy Program Assistant, at acornell@geneticalliance.org.

Last Updated: November 10, 2008
p>Please contact Andria Cornell at (202) 966-5557 x207 or acornell@geneticalliance.org with any questions about the Coalition for Genetic Fairness and its activities.


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