undefinedCoalition Home Working to pass Genetic Nondiscrimination Legislation
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Executive Committee

Sharon F. Terry, Chair,
Genetic Alliance

Cynthia Pellegrini,
American Academy of Pediatrics

Derek Scholes,
American Heart Association

Joann Boughman,
American Society of Human Genetics

Timothy Leshan,
Brown University

Marla Gilson,

Barbara Harrison,
National Society of Genetic Counselors

Jeremy Gruber,
Council for Responsible Genetics


Additional Resources


arrow icon Coalition for Genetic Fairness

arrow icon Genetics and Public Policy Center

arrow icon National Council of State Legislatures

arrow icon National Human Genome Research Institute (NHGRI), National Institutes of Health

Additional Reading and Information

arrow icon Stories of Genetic Discrimination

Genetic Alliance YouTube Channel

Genetic Counseling and Testing in Families with Hereditary Nonpolyposis Colorectal Cancer
Hadley et al. Archives of Internal Medicine March 2003

Faces of Genetic Discrimination: How Genetic Discrimination Affects Real People.
National Partnership for Women and Families, on behalf of the Coalition for Genetic Fairness. July 2004

Keeping Pace with the Times—The Genetic Information Nondiscrimination Act of 2008
New England Journal of Medicine

Secretary's Advisory Committee on Genetics, Health, and Society (SACGHS)
Fifth Meeting, October 18-19, 2004
During the Fifth Meeting of the SACGHS, the public, healthcare providers, and additional stakeholders presented their perspectives on genetic discrimination and how the issue impacts them and their families, work, and communities, as well as the fields of research and healthcare in general.

View GINA: Public Law 110-233

Last Updated: November 10, 2008

Please contact Andria Cornell at (202) 966-5557 x207 or acornell@geneticalliance.org with any questions about the Coalition for Genetic Fairness and its activities.


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