What's Next?

The next step: In order to realize GINA's potential, the health community, led by the Coalition for Genetic Fairness, will raise awareness of GINA, what it means, and how it will impact not only health insurance and employment, but healthcare delivery, research, and emerging technologies. We will encourage dialogue, and examine challenges and opportunities.

The Coalition for Genetic Fairness will convene the space for this dialogue--space that is open and where all perspectives are represented. Through this, we will inform the regulatory process, address the needs of stakeholders, and create and disseminate a variety of educational materials and resources.

What's going on now? The regulatory process for GINA has already begun: On October 10, 2008, the agencies charged with writing the regulations for GINA's implementation issued a Request for Information (RFI) in the Federal Register. The CGF will draft comments with the help and input of the health community. Learn how to Take Action here.

Would you or your organization like to become involved in the CGF's initiatives, but are not yet a member? Visit http://www.geneticfairness.org or contact Andria Cornell at acornell@geneticalliance.org for more information and to learn how you can ensure the value of GINA is realized!