undefinedCoalition Home Working to pass Genetic Nondiscrimination Legislation
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Executive Committee

Sharon F. Terry, Chair,
Genetic Alliance

Cynthia Pellegrini,
American Academy of Pediatrics

Derek Scholes,
American Heart Association

Joann Boughman,
American Society of Human Genetics

Timothy Leshan,
Brown University

Marla Gilson,

Barbara Harrison,
National Society of Genetic Counselors

Jeremy Gruber,
Council for Responsible Genetics


What's Next?

The next step: In order to realize GINA's potential, the health community, led by the Coalition for Genetic Fairness, will raise awareness of GINA, what it means, and how it will impact not only health insurance and employment, but healthcare delivery, research, and emerging technologies. We will encourage dialogue, and examine challenges and opportunities.

The Coalition for Genetic Fairness will convene the space for this dialogue--space that is open and where all perspectives are represented. Through this, we will inform the regulatory process, address the needs of stakeholders, and create and disseminate a variety of educational materials and resources.

What's going on now? The regulatory process for GINA has already begun: On October 10, 2008, the agencies charged with writing the regulations for GINA's implementation issued a Request for Information (RFI) in the Federal Register. The CGF will draft comments with the help and input of the health community. Learn how to Take Action here.

Would you or your organization like to become involved in the CGF's initiatives, but are not yet a member? Visit http://www.geneticfairness.org or contact Andria Cornell at acornell@geneticalliance.org for more information and to learn how you can ensure the value of GINA is realized!

Last Updated: November 10, 2008

Please contact Andria Cornell at (202) 966-5557 x207 or acornell@geneticalliance.org with any questions about the Coalition for Genetic Fairness and its activities.


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